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Survey: How IDDRCs Engage People With Lived Experience

Researchers at the University of Iowa are conducting a national survey to better understand how Intellectual and Developmental Disabilities Research Centers, or IDDRCs, involve people with lived experience in their research, outreach, training, and organizational decision-making.

Person participating in a survey on a computer.This survey aims to learn what meaningful engagement looks like in practice and how centers can better include the voices of people with lived experience in shaping programs, priorities, and research.

The survey takes approximately 5 to 20 minutes to complete. Participation is voluntary, and no identifying information is collected.

This study is open to individuals who are connected to IDDRCs and interested in sharing their perspectives on inclusion, engagement, and decision-making in research settings.

If you would like to participate, you can access the survey on Qualtrics.com

Sara Jane Webb Ph.D. - Clinical Translational Core IHDDMan in a wheelchair with his dog on a bridge.