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Participate in Research: STRIPES Study for Families Affected by Genetic Conditions
The STRIPES Study (Study of Research Interests, Priorities, and Experiences) is a new research project from the University of Washington. The study aims to better understand what families and caregivers of individuals with genetic conditions consider important when it comes to research priorities.
Who can participate: Caregivers or family members of individuals affected by genetic conditions.
What to expect: Participants will complete an online survey focused on their experiences, perspectives, and priorities related to research. The survey can be completed at any time and does not involve phone calls or in-person visits.
Visit the UW STRIPES page on REDCap to learn more or participate in the study.
