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Via Hope for HIE: We’ve heard from thousands of families that sleep issues are one of the TOP unmet needs of our community, and across all outcomes and impacts, impacting the entire family.
Now is Your Chance to be Heard & Drive Research Forward
We are part of a research proposal led by Dr. Renee Shellhaas from our Medical Advisory Board to explore and better understand (and treat!) sleep issues with HIE, beginning in the NICU and following growth, development, interventions and outcomes into childhood.
YOU get to share what matters most to you in this research, and your experiences with sleep issues and HIE.
It’s a SHORT survey to get started… and we need as many families as we can, no matter where you live in the world, to drive patient-family input and get this study planning started!
And, join Hope for HIE in April for HIE Awareness Month with the theme of TRANSFORMING HOPE.