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National Core Indicators – IDD National Reports Released
The National Core Indicators (NCI) team has released the 2023-24 National Reports, offering key insights into the experiences of individuals with intellectual and developmental disabilities (IDD) who receive state-funded services. Data was collected from over 17,000 adults with IDD and nearly 38,000 family members across 30 and 18 states, respectively.
Key Takeaways from the In-Person Survey (IPS):
- Employment: 17% of individuals with IDD have paid jobs in the community, and 42% of those not employed express a desire for paid work.
- Community Inclusion: 71% feel they can participate in activities they enjoy in the community, and 28% engage in community groups.
- Choice and Decision-making: 23% report they chose where they live, and 17% chose their staff.
- Relationships: 12% of individuals often feel lonely, and 44% seek help with making and maintaining friendships.
- Satisfaction: 35% of individuals desire to be more involved in community groups.
- Self-direction: 21% report using self-directed supports, with 15% mainly making decisions about these services.
- Workforce: 42% report frequent staff turnover or changes.
- Health: 29% visited the emergency room in the past year.
Key Takeaways from the Family Surveys:
- Service Impact: More than 90% of families feel the services and supports their loved ones with IDD receive help them live a good life.
- Access to Services: Although most families report receiving the services they need, some do not:
- 88% of family guardians report accessing necessary services.
- 73% of adult families and 64% of child families report the same.
- Satisfaction: Fewer than half of families report always being satisfied with the services provided.
Data At-A-Glance Infographics
For detailed findings, check out the 2023-24 IPS Data At-A-Glance and the Family Surveys Data At-A-Glance.
The reports highlight significant differences in outcomes across states, pointing to areas for policy improvement and quality enhancement in services. These findings can inform data-driven recommendations to strengthen Medicaid-funded services for all individuals with IDD.
