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Via the AUCD Weekly
Consensus Statement on Healthcare for Youth With Neurodevelopmental Disabilities Published in Pediatrics
An interprofessional and community-engaged panel of experts has published the first peer-reviewed consensus statement establishing healthcare standards for youth with neurodevelopmental disabilities in the journal Pediatrics. The Supporting Access For Everyone (SAFE) Initiative was launched by the Developmental Behavioral Pediatrics Research Network and Association of University Centers on Disability to address these health disparities. An interprofessional consensus panel of healthcare experts, adults with NDDs, and caregivers convened to guide the process of integrating available research evidence with testimony received through a public forum of 40 presenters from across the country. A systematic consensus-building process was used to derive 10 statements across five key domains.
Fostering Joy for Audiologists: Why and How to Embrace a “Joy Lens” in Working with Families
Thursday, April 11, 2024, 8:00 – 9:00 PM ET
This presentation will highlight Fostering Joy, a project that brings together families of children deaf or hard of hearing (DHH), DHH leaders, and professionals working to support children who are DHH and their families. Fostering Joy is aimed at promoting positive engagement in families with DHH children, celebrating “magic moments” of connection and growth, and bolstering professionals’ ability to emphasize joy in the work that they do with children who are DHH. Audiologists and audiology trainees are at the heart of “setting the tone” for families. Join this workshop to learn about the rationale for and strategies to infuse JOY into the work that you do.
New Grassroots Advocacy and Action Coalition (NAAC) Recruiting Advocates and Family Leaders
Application: April 15, 2024
As part of AUCD’s workplan, we are recruiting three disability leader advocates (self-advocates) and three family leaders to help build awareness of activities to improve access to HCBS and engage in leadership opportunities. These individuals will be identified through a competitive application process and will be compensated directly for their time. They will work with AUCD’s Home and Community Based Services (HCBS) Special Interest Group (SIG), a core workgroup (stakeholder engagement, knowledge translation, and quality) and with their UCEDD and/or LEND program to spread information about the work of the NAAC. Applications must be received by April 15. The project starts May 1 and ends September 30, 2024. Please apply at this link, and reach out to Sarah Swanson (sarah.swanson@unmc.edu) for any questions.
AIR-P Presents: Introduction to Plain Language Writing for Academics and Researchers
Tuesday, April 16, 2024, 4:00 – 5:00 PM ET
Celebrate Autism Acceptance Month with this Autistic Self Advocacy Network and Autism Intervention Research Network on Physical Health (AIR-P) April webinar! Get an overview of plain language writing for people who may be more used to writing in academic language. Attendees will learn the principles of plain language writing and have a chance to put them into practice with interactive exercises. There will also be time for questions and answers.
