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Exploring The Needs of Middle Eastern Young Adults with Intellectual Disabilities (ID) during Health Care Transitioning to Adult Care

Image: Silhouette of people sitting at a table across from each other.

We are looking for:

  • Middle Eastern Young adults ages 14-24 years with intellectual disability and their caregivers
  • Living in Washington State
  • Can complete a 1-hour interview three times

Participation in this study is voluntary

Image: Silhouette of people sitting at a table across from each other.

Study Purpose:

  • Share the experiences of Middle Eastern young adults with ID and their fam during healthcare transition from pediatric to adult services
  • Explore the quality of life and healthcare access of Middle Eastern young adults with ID

Study Activities:

  • Young adults and their caregivers will:
    • Participate in 3 interviews
    • Complete a quality of life measure twice at the enrollment and exit
    • Complete a photo narrative project related to healthcare transition
  • Most of the study activities will occur virtually, however, one in-person visit might be required
  • Some of the study activities will take place at Open Doors for Multicultural Families
  • Interviews may be conducted in Arabic or English based on preference

Compensation:

  • Each family will receive a $100 gift card for completing all study activities

This study has received approval from the UW Human Subject Division (STUDY00019215)

To enroll or for more information, please contact: Reham Abuatiq PT, PhD Candidate, University of Washington – 1959 NE Pacific St, Seattle, WA 98195

Download the research flier in English or Arabic.

Photo: UW Autism Center Director Annette Estes looking through a block at a young child in a clinic setting.Image: Logo for the CUB Study (Cannabis Use and Brain development Study) of a white bear cub hugging a purple parent bear.