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Centers for Disease Control – NCBDDD – Surveillance of Muscular Dystrophies
Deadline: May 3, 2024 (link to view opportunity.)
Award Ceiling: $700,000
The purpose of this NOFO is to conduct longitudinal population-based surveillance of select muscular dystrophies [Duchenne MD (DMD), Becker MD (BMD), myotonic dystrophy (DM), facioscapulohumeral muscular dystrophy (FSHD), limb-girdle MD (LGMD), Congenital MD (CMD), Emery-Dreifuss MD (EDMD), and distal MD] to describe key health outcomes and health inequities, with the goal of identifying opportunities to improve the health of all individuals living with muscular dystrophies. The population included in this surveillance activity can be an entire state or a region within a state, with the applicant utilizing multiple data sources to generate an accurate and complete population-based cohort. Individuals with muscular dystrophy should be identified and followed longitudinally through sources such as neuromuscular, specialty care and other outpatient clinics; administrative data (e.g., vital records, Medicaid/Medicare, hospital discharge); or other sources available to funding recipients. This project will involve three components. Component A (5-7 awards) includes the core surveillance and dissemination activities.
