Home / Stories / Rethinking Ableist Language: The NIH’s Mission Statement Redefined

The NIH building with trees surrounding the front of the building.

September 15, 2023 – Language is a powerful tool that shapes our perception of the world. It can either promote inclusivity and diversity or reinforce stereotypes and biases. In recent years, there has been an increasing awareness of the need to scrutinize the language used in official documents, particularly within government organizations. One organization that has come under the spotlight is the National Institutes of Health (NIH). Concerns have been raised about the ableist language in the NIH’s mission statement.

The NIH’s mission statement is the following: “to seek fundamental knowledge about the nature and behavior of living systems and the application of that knowledge to enhance health, lengthen life, and reduce illness and disability.” While the mission itself appears to be well-intentioned, the choice of words has raised concerns among disability advocates. The use of the term “disability” in this context implies that disability is inherently negative and something to be reduced or eliminated.

Ableism, like other forms of discrimination, is ingrained in our language and culture. It reflects a bias that devalues and marginalizes people with disabilities. The existing mission statement reinforces this bias by framing disability as an issue to be minimized rather than recognizing disability as an aspect of our diversity.

In response to these concerns, the NIH has proposed an alternative mission statement: “To seek fundamental knowledge about the nature and behavior of living systems and to apply that knowledge to optimize health and prevent or reduce illness for all people.”

The new statement removes the reference to disability and instead focuses on improving health and preventing or reducing illness for everyone. This shift in language is significant because it acknowledges that health optimization should be a universal goal, inclusive of all individuals.

Why the Change Matters

Promoting Inclusivity: The proposed mission statement recognizes the inherent worth and value of every individual. It sends a powerful message that the NIH is committed to inclusivity and promoting the well-being of all people.

Reducing Stigma: By removing the ableist language, the NIH takes a step toward reducing societal stigma associated with disabilities. This change can contribute to a more accepting and inclusive society.

Encouraging Collaboration: A more inclusive mission statement can help foster collaboration and partnerships with disability advocacy organizations, leading to better research and outcomes for individuals with disabilities.

Language matters. It shapes our perspectives, attitudes, and actions. The National Institutes of Health’s decision to reconsider their mission statement and remove ableist language is a positive step towards creating a more inclusive healthcare landscape. Make your voice heard and take part in the feedback process to ensure that the NIH’s mission statement reflects the values of a diverse and inclusive society.

Click here to learn more.